What we are doing across UHB

R2P2The NIHR Biomedical Research Centre (BRC) has many active PPIR groups, including a Rheumatology Research Patient Partnership  (Rheumatology Patient Research website), known as R2P2 (pictured),  and Liver PPI panel. The Birmingham 1000 Elders group is also strongly involved in trial participation, and there are plans to develop a PPI panel from within this group.

 

 

 

The West Midlands Genomic Medicine Centre (WMGMC) is recruiting to a PPI panel, which will directly influence the future of the 100,000 Genomes Project in the West Midlands. This panel will meet 3-4 times a year. There have also been questionnaires sent out to patients, which are directly fed back to key members of the WMGMC.

 

SRMRC 2The NIHR Surgical Reconstruction and Microbiology Research Centre (SRMRC) have a PPI group, known as the Accident, Burns and Critical Care (ABC) group (pictured).  This group meets 3-4 times a year, allowing members to hear about the latest SRMRC studies and give feedback and review patient information material. There are also further PPI opportunities within the SRMRC, including focus groups, questionnaires, and the ability to be a co-applicant on a research grant, ensuring patient and public involvement throughout the research process.

 

 

The NIHR Trauma Management MedTech Cooperative (Trauma MIC) is also committed to PPI, and will develop their research strategy in consultation with patients and the public.

The stroke team at the Queen Elizabeth Hospital Birmingham (part of UHB) are also recruiting to a PPI panel. The panel is open to anyone who has experience of strokes, or has cared for someone who had a stroke. They have developed a Stroke PPI panel flyer with more information. Interested applicants can contact Katherine Ahlquist or Michelle Bates.

There are also regular UHB events, including a monthly drop-in session for UHB staff to discuss their PPI plans and UHB-wide events, such as a recent public workshop on data and consent. Other research teams at UHB, including the NIHR Wellcome Trust Clinical Research Facility (the CRF) , are committed to PPI. The CRF have recently recruited to a PPI panel, and meetings will be held throughout the year.

Patient quotes:

“It has been a great opportunity to be made aware of research that is being undertaken and to gain a greater insight into the efforts being made. I am happy to be part of the patient research partner group.” Sjogren’s Syndrome patient

DataConsent8“Good session- look forward to more. Research is important – the message needs to get out there.”   Patient participant at data and consent event

 

 

 

 

“I also enjoy meeting up with other patient research partners especially from overseas and have learnt from them. I feel valued as a person with a valid opinion rather than just a patient. …RA can be defining in such a way that you forget who you were and what you could achieve before RA” struck.” Patient with rheumatoid arthritis

DataConsent

“Extremely informative and allowed us to raise our own questions/concerns to fully participate. Very interesting content.” Patient participant at data and consent event