Involving patients in research is a very important part of the work of the Birmingham CRF.
All studies run through the CRF are designed to benefit patients, either directly or indirectly making patient involvement and experience essential to the way in which the CRF is run.
What’s happening in the Adult CRF
- Research Sister Jackie Cobb is a member of a national PPI (Patient and Public Involvement) working group, representing Birmingham and the patients that are seen at the facility.
- Representatives from the CRF attended the ‘Patient experience conference’ on 16 October 2014. Speakers included national leaders in the field of patient experience, with the aim of sharing best practice and pooling knowledge.
- Research nurses from the IRF are also involved in the Birmingham Rheumatology Research Patient Partnership (R2P2); a group of patients, support groups, family members and investigators. Members of R2P2 are actively involved in setting priorities for research, informing the way that research studies are carried out and helping to deliver future knowledge. The group was officially launched on 24 October 2014. Research nurse Jackie Cobb presented an R2P2 poster at the 2014 Sheffield UKCRF conference. Please click here to download the poster, or click here for the R2P2 website.
- Research Sister Linda Coughlan is doing a lot of work on developing a research patient survey, along with the other patient experience champions, that will collect feedback from people that visit the CRF.
- Research Sister Karen Boardman attended an INVOLVE meeting in July 2014 for public involvement leads in London. During this meeting topics covered included barriers to public involvement, best practice and future design and delivery.
- Please click here to download the CRF PPIEP (Patient and Public Involvement, Engagement and Participation) Strategy document.