Rare Disease Day 2019

02 April 2019

28 February marked Rare Diseases Day and the QEHB Centre for Rare Diseases team  gathered in the atrium to raise awareness of their work.

There are over 6,000 rare diseases in the UK, with one in 17 people likely to be affected by a rare disease during their lifetime.

The Centre for Rare Diseases, based in the Heritage Building, brings together multi-speciality and multi-disciplinary teams to deliver care to patients with a rare disease, providing a one-stop clinic where patients can undergo pre-planned tests and see their specialist and wider multi-disciplinary team in one visit.

Michelle Grinham, Clinic Support Manager at the Centre for Rare Diseases, said: “We run 79 clinics over 19 different specialties, one of which is a virtual clinic.

“We average 1,000 patients a month, so we’ve really grown since we first opened in September 2015.

“The service that we run enables patients to come and have a variety of treatments, tests, and meet with their specialist, all in the course of one appointment.

“This makes things easier and smoother for them and improves their hospital experience.

“The QEHB Charity has also been a great supporter to the centre, funding posts and helping us hold events to make hospital visits as good as possible for all our patients.”

Find out more about the Centre for Rare Diseases by visiting hospitalcharity.org/centreforrarediseases